Wednesday, August 26, 2009
Above picture taken Wednesday, Aug 26th, 13 days postop ---After a concern that the cheek implant had possibly moved, Taylor was seen in Dr. Genecov's office on Thursday afternoon in Dallas. The Dr. assured Taylor that the implant was in the proper place and that the problem noticed the prior day was from his prosthetic eye. The eye had moved during the night due to pressure placed on the side of the face. This had never happened before and so there was concern on our part as well. All turned out just fine and we are all relieved and also glad that Taylor was able to speak to the Dr about any questions or concerns that he had about how he has been coming along.
Monday, August 24, 2009
Tuesday, August 18, 2009
On the Road to the Dr. on Monday, Taylor was having a struggle with Nausea although not alot of pain. Those on the Central Expressway got more than they bargained for if they looked over at Tay at just the right time. By the time we got to the Dr, he had lost most of the liquids he had taken for the morning.
Dr Genecov left town during the weekend and Dr. Barcelo did Taylor's followup and agreed to let him head home to NM. He changed Taylor to all liquid medications with the hope that the change in meds would keep down the nausea and allow Taylor to begin eating and regain strength. We left immediately after the appointment, headed to our headquarters in Arlington, packed up and were on the road a little after 4 Texas time. A quick trip through Abilene, Taylor, Oliver and I made it back to Clovis a quarter til 11 NM time.
Sunday---Day 4 Post-Op.
This is the day that Taylor had been looking for. Back to solid foods! He opened the morning with half a mini-bagel. Able to eat some, get out of bed a for quite awhile. Thought that he was on the mend until he woke up on Monday nauseated again... Face looking good symmetrically on the temple and cheek. Looking forward to the "final" look after swelling reduces more. Bruising is starting to lighten.
Saturday---NOT a good day... 3rd day post-op
Taylor woke up this morning feeling awful. Had vomitting all day, and had to make a late night run to the all-night Walgreens Pharmacy in Longview to get some Phenergen so the boy could get some rest and some relief. It appeared the swelling had moved into the other side of his face and the area under his chin/neck took on some swelling as well. Spent the whole day in bed except the times that he attempted to sit in the LR and ended up back in bed.
No Posting for Friday.
Way too busy shuffling Bryan to the airport,
sending out invites for "2 Shabby Divas" and moving to
Holly Lake Ranch for the weekend.
Thursday, August 13, 2009
Ahhhhh....Taylor came home today! Well, to Aunt Holly's & Uncle Jim's. I got the call that he had been discharged a little before 11 a.m. so off I went to go get him and his pa from the hospital.
Tay made the 40 minute trip back to the house just fine and then had some chicken noodle soup (swallow noodles, don't chew) & strawberry cheesecake yogurt for dessert, at the table.
A little downtime in bed and on the computer in the afternoon, and then up for some Ramen (swallow the noodles, don't swallow) for dinner and again---at the table!
We feel that he is moving along just fine at a pretty rapid pace. Swelling is starting to subside and pain is not too horribly bad.
It appears with the swelling of his face that he had a wisdom tooth pulled and his suffering with extensive swelling. He says the side of his face is numb and basically can't feel when touching it.
Thanks for all your thoughts and prayers...
So it's the morning after and Bryan has sent me via IPhone a morning pic of Taylor. Dr. came in at 6:45 and pulled the drainage tube. Taylor is keeping down his liquid diet and pain is minimal.
Still unable to tolerate an icepack to the face so his swelling may be more than expected, but hey---if he's okay with it, then I am!
Off to the store to get his liquid diet for the week!!
We are told he will be discharged somewhere between 11 and noon...yay!
Surgery went well. He was in for about 2.5 hours. Along with the previously mentioned procedures, the Dr. decided to go ahead and put more fat into the bottom eyelid. Interestingly enough, the tissue came from the inside of the naval. So no scarring, no "fat" lost from my 118 lb boy!
The filing down on the temple was more extensive than originally thought so a drain hose was needed to remove any fluid buildup that may cause pressure and additional swelling.
An outpatient stay became an overnight stay which we were very thankful for. His liquid diet wouldn't stay down and without the morphine he was a miserable guy.
And just so you know, if you are new here, these pictures are posted with Taylor's permission.
Bryan stayed the night and I came back to my sister/brother in laws to stay the night with Oliver.
Wednesday, August 12, 2009
If you are new here, please check out all the way to the beginning to understand why Taylor is having surgery in the first place! A victim of Retinoblastoma when he was 3 years old, he has endured numerous surgeries and radiation. Now 18 year later, Taylor has had the opportunity to get reconstructive surgery to fix the left side of his face where radiation caused the bones not to grow and to fix the eyelids that have needed some "plumping up".
He went in for surgery at 12:55 and we are expecting him to be in surgery for 2 to 2.5 hours. The Dr. told us yesterday that it should only be day surgery We will, however, be staying in the Dallas area for a week or so.
Today: 1) Insert cheek implant through the mouth, slide into place and attach via screw. 2) Remove fat (if you know Taylor, he has zero on the body--but any-who) from abdomen and insert into upper eyelid. 3) Make incision left side of head and work way up to the left temple to file down and smooth the bone paste that was inserted last surgery in April, making more even to match the right temple.
Thanks for checking in on Taylor! Your prayers and well-wishes are most appreciated.
Friday, July 31, 2009
home with Taylor to gear him up for the second surgery!
He has his pre-op on the 11th and the day surgery for his cheek implant
and eyelid extension on August 12th.
More info to follow....
Saturday, May 9, 2009
We are ecstatic at the results!!
At our followup on Thurs, Dr. G said that
we only need one more surgery. Due to
all our schedules we are looking at August
to get the cheek implant (slides through
the upper portion of the mouth to fill in
the cheek area) and insertion of fat into
the upper eyelid. I offered for Dr. G to use
my fat but he said that wouldn't be happening.
Not sure where he's gonna find an ounce of
fat on Taylor...but I guess we have 4 months
to fatten him up!
A picture with our wonderful hosts before we
took off Thursday afternoon for home...
Friday, May 8, 2009
Wednesday, May 6, 2009
Bryan flies in at noon tomorrow and Tay's
appointment is at 3. We will know more then!
I can't imagine that Dr. Genecov won't give
the thumb's up to send us home for a couple of months
until he is ready
to start on surgery #2 (it's a series of 3).
Hugs to you all........
Tuesday, May 5, 2009
and didn't get up til almost noon!
Must have worked for him tho....
He had the energy to entertain me! Woohoo!
and he was up to
going with me
to be the passenger as
long as we drove
at a slow........
if he could ride in the front seat....
could throw some Oakley's on his sweet face....
and make a Guitar Center stop!!!
On the way we dropped Oliver to daycare
so he could hang with his
"pups" (peeps in puppy language) and that
wore him out for the rest of the night.
Tay is on the couch with me as we speak.
Feels much better.
Seeing the boys personality again. We are happy campers!
He ate fried rice from Pei Wei and even
had a couple of bites of dessert.
I think he's coming back to us!!
Bryan made it home safely where
he said it was 82 and blue skies!
Guess he spent some time on the Goldwing before he has to turn around and make his way back to us on thursday...
We'll see you tomorrow!!
Monday, May 4, 2009
drainage tube removed. It's about a 45 minute drive
Sunday, May 3, 2009
Question of the day!
Well, some better. He did eat half a can of chicken noodle soup and had some protein shake. Good news, I guess, is that he's losing a little weight. (LOL) He got up for a little bit (5 minutes) in the living room to hang with his family, and then it was back to bed. All in all though, I think he is doing some better.
This first pic shows how incredible the comparison of the temple looks as well as the bottom eyelid. Wow!
However, we still have a swollen jaw...
but that shall pass!
Monday. 10 a.m. (tomorrow)
Dr's visit and the tube gets pulled!
This is the first step to feeling better.
Tay can hardly wait!
Next post will be after the Dr's visit.
Thanks for all your prayers.
We are grateful for each of you.
So... Here we go....
Taylor had a fair night. Said he was up a couple of times, couldn't sleep. He's got his computer and phone handy so I'm sure he was able to get a "Scrubs" episode under his belt.
He's drank a little apple juice and half a can of chicken noodle soup. Due to the hole in his mouth, he's decided he can't eat anything...just the soft stuff. Maybe some chocolate pudding would be a good idea?
His aunt wants to make him some chewy, chocolate brownies... I suggested she make them up, not cook them, and he can just eat the batter. Have to be with a spoon though... no straw - Dr's Orders.
The main difference today is the fat, chipmunk cheek that he acquired during the night. Looks like he had a wisdom tooth pulled!
Saturday, May 2, 2009
Skip ahead 16 years.....
Due to the radiation treatments, Taylor's left temple did not grow while the rest of his bones grew at a normal rate. This created a groove at the temple and the face to not be symmetrical. The lower left eyelid has began to droop even though this was corrected when in 5th grade. The other concern is the upper eyelid to have more mobility.
So now you know what has landed Taylor at Forest Park Medical Center, Dallas, TX
in the hands of Dr. David Genecov.
Taylor prior to surgery ... chilling and texting.......
Pre-Op: Taylor had to be stuck twice to find a vein...
The surgery lasted about 2 and a half hours.
Not pictured is the huge hole at the roof of Taylor's mouth. It's about the size of 1/3 of the pinky finger. They use the mouth tissue to fill in the bottom lid. They do this by cutting inside the eyelid (from side to side) and putting the tissue in that area. After suturing the lid, sutures were put in place to pull the area up and taped to the forehead. This will give the area time to heal properly.
More to come..........